Share Your Story

If you have experience living with or taking care of a loved one with MCT8 deficiency (Allan–Herndon–Dudley syndrome [AHDS]), others in the community want to hear from you. Understanding the details of your journey can help them realize they're not alone, educate them, inspire them to share their story, and seek the right help for their child.

HEARING OTHER'S EXPERIENCES CAN BE DEEPLY REASSURING FOR CAREGIVERS

"Finding those veteran moms who have walked in these shoes before me and welcomed me with open arms…it can feel very isolating, but this community…doesn't make it feel that way anymore."

—Meghan

"I could bounce ideas off people and ask them questions, and other parents who had been dealing with it for a lot longer could give me their tips."

—Jeremiah

"I felt very alone on an island, and then a family member found the MCT8 [deficiency]…community…It was just so amazing."

—Nicole

SHARE YOUR STORY

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HEARING OTHER'S EXPERIENCES CAN BE DEEPLY REASSURING FOR CAREGIVERS